Posts Tagged With: Living Kidney Donor Network

News Feature

We’re thrilled to announce that Gary’s story is being featured in the Deerfield Pioneer Press.  Thank you to the journalists, editors, and readers out there for taking such an interest in our Share Your Spare campaign, and in the needs of people like Gary across the country.

And THANK YOU for continuing to follow our work and for your efforts to share the story and spread the word!

Deerfield synagogue helps local man seeking kidney

BY NATASHA WASINSKI For Sun-Times Media | @NatWaz December 6, 2013 1:55PM

Rolling Stones fan Gary Greenberg, and his wife, Marti, have had one rock song running through their heads lately: “You Can’t Always Get What You Want.”

“But if you try sometimes you just might find you get what get what need,” Mick Jagger continues to croon in the tune.

he lyrics resonate with the Deerfield couple now like never before. At 73, Gary Greenberg is on the verge of kidney failure and is in dire need of a live organ transplant.

None of his immediate family members are a viable donor.

So another line from a ’60s classic comes to mind: “I’m gonna try with a little help from my friends.”

After her husband’s diagnosis Oct. 28, Marti Greenberg sprung into action, sending an SOS email to notify friends and family across the country about his condition …

Read the Full Article Here

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Kidney Donor Webinar

So You Want To Be a Living Kidney Donor!!

A Webinar Presented by the Alliance for Paired Donation and the Living Kidney Donors Network Tuesday

December 3, 2013 7:00 PM Eastern, 6:00 PM Central & 4:00 PM Pacific Time

The Living Kidney Donors Network (LKDN) and the Alliance for Paired Donation (APD) are two such organizations. They have come together to offer the first webinar to educate those who want to learn more about the process of donating a kidney. The webinar will educate you about the living kidney donation process, from the donors perspective. Anyone who is interested in being a living kidney donor should attend. Those in need of a kidney transplant will also benefit by learning more about the donation process from the donors perspective. Some donors have had a difficult time explaining to their friends and family members their interest in donating. The webinar will provide you with information on how to express your interest in being a kidney donor. The webinar is FREE. You can attend the webinar by using any computer that has broadband internet access. If you don’t have access to the internet, you could listen to the presentation via the telephone.

Click here to register and for telephone dial in information if you prefer a phone to the computer.

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FAQs for Donors

Potential Donor FAQ’s

Who can donate?

Donors are often a close relative such as a parent, brother or sister, son or daughter but may also be individuals who are not related but have an established emotional relationship with the recipient such as a partner or close friend. Sometimes a donor and a recipient may be incompatible with each other because of blood group or tissue-type and in this case it may be possible for them to be paired with another donor and recipient in the same situation. This means that each recipient will benefit from a transplant that they would otherwise not have had (this is called paired donation). Donors may also offer to give a kidney to someone who is on the waiting list for a transplant but whom they have never met before (this is called non-directed altruistic donation).

How will I know if I am suitable to donate?

You will have a thorough medical and surgical and psychological assessment to establish that you are fit and healthy to donate. A number of people who wish to donate find that they are not able to do so because health problems are discovered through the assessment process. Members of the healthcare team involved in your assessment include counsellors, coordinators and social workers. Gary has chosen the Northwestern Memorial Hospital Kovler Organ Transplantation Center.  For more information you can call 312-695-0828.

Do I need to be related to the person who may receive the kidney?

While it is commonly family members who offer to be kidney donors, there are often spouses, friends, members of the community, or people from the same place of worship who can be highly successful kidney donors. Being related is not a requirement to donate a kidney.

Are there any risks to the donor?

All operations carry some risk and this is no different for living donation. Donors are at risk of infections (e.g. chest, wound or urine) and, more rarely, bleeding or blood clots. There is a very small risk of death for the donor: this is estimated at 1 in 10,000 for this operation.

Are there any long-term risks?

There is a possibility of a rise in blood pressure and excess protein in your urine. However studies have shown that there is no long-term effect on the health of the donor or your remaining kidney.

Will I have to change my lifestyle after donating?

There is no specific reason why you should not be able to lead a normal healthy life as before.

Will donating my kidney affect a future pregnancy or fathering a child?

The small amount of data available shows that, having donated one kidney, there is no evidence to suggest an increased risk of complications during pregnancy. A man’s fertility will not be affected.

Will I be covered by my health insurance?

You should check with your insurance company. If there is more than one transplant hospital in your city, insurance might not allow you to go to both. However, Gary’s health insurance will cover the costs of the donor’s evaluation and transplant.

What if I live in a different part of the country from the person I am donating to?

You can still donate. The transplant team can arrange for your donor assessment to take place at a hospital near you if that is more convenient for you. Usually the donation will take place in the hospital where the person you are donating to is cared for. However, different arrangements can be made depending upon individual circumstances for both the donor and recipient. There are organizations that could help you with the travel and living expenses.

How long does the donor assessment process take?

This varies. You should check with your hospital. In general, this will take approximately two to six weeks. There is variation depending upon where you live and what tests you may require. Wherever possible, the assessment is tailored to your needs and commitments.

 How much time will I need to take off work?

Most transplant centers will try to arrange the tests before the operation around your work schedule to minimize disruption to your job. It is sometimes possible to arrange for some of this to be done locally if the donor lives a long way from the transplant center. The operation and recovery period varies depending on surgery, your individual recovery and the type of work you will be resuming.  Many people that have a desk job are back to work in three weeks. If your job is physically demanding, you might need six weeks or more to resume all your prior activities.

 How long will I be in hospital?

This varies depending on your individual recovery. Many donors only spend one day in the hospital. It is not uncommon for someone to have to spend 2 or 3 days in the hospital to recover.

Will I need to take any medication after donating?

You will need to take some painkillers immediately after the operation and during the recovery period. However, you should not need any long-term medication as a result of kidney donation.

What about follow-up?

You would usually be seen by the transplant team between two and six weeks after donation.

 Do some donors have trouble making the decision?

Some people make the decision easily. Others go through some soul searching before deciding. Being afraid of donating a kidney or feeling guilty about not wanting to donate is quite normal. The only “right” decision is the one that makes you, the potential donor, feel comfortable. Finding out more information about living donation and what it involves may help you with this decision.

Can I speak to somebody who has donated?

Your coordinator at your local transplant center should be able to arrange this for you. Also, ask about the Living Kidney Donors Network Mentors Program. In addition, Brian Kunz, a BJBE congregant, has graciously offered to speak with any prospective donor for Gary.  Brian can be reached at kunzbrianj@aol.com.

What if I decide that being a donor isn’t for me?

You have the right to withdraw your offer at any time and you would be supported in your decision by the transplant team.

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Questions Answered

Harvey

Harvey Mysel, Founder & President, LKDN

To our friends in the Chicago-area, we have an incredible opportunity to learn more about living donation!  Harvey Mysel, the founder of The Living Kidney Donor Network and a two-time kidney donation recipient, will be speaking at the Glencoe Public Library on Tuesday, November 12th at 7:30pm.  This is a wonderful opportunity to not only meet an individual who has experienced the miracle of being a living donor recipient, but also get your questions answered about the process and the impacts on the donor and recipient.

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